School communication templates
School is where many flares first show up, and where they have the most visible consequences. These are templates you can adapt. Customize the bracketed fields. Copy and paste.
To: classroom teacher
Template 1: Introducing PANS/PANDAS to a new teacher
Hi [Teacher Name], I want to share some context about [child]'s health that may affect how they show up in class this year. [Child] has [PANS / PANDAS / suspected PANS], a post-infectious autoimmune condition that can cause sudden changes in behavior, focus, anxiety, and handwriting. The symptoms come in flares, often triggered by infection. When [child] is in a flare, you may notice [list specific signs: more anxiety, refusal to do work they normally can, handwriting changes, irritability]. This is not behavior they are choosing. The flare passes, often within days or weeks, and they return to themselves. I will keep you posted as flares come and go. If you see something concerning, please reach out to me directly rather than escalating to discipline. Thank you for partnering with us on this.
To: classroom teacher
Template 2: Notifying the teacher of an active flare
Hi [Teacher Name], [child] is in an active flare today. You may notice [specific likely symptoms]. Please go light on academic demands today, allow more breaks if needed, and avoid public correction. We are working with our care team. I will let you know when things settle. Thank you.
To: 504 coordinator or special education office
Template 3: Requesting a 504 plan
I am writing to formally request a 504 plan meeting for my child, [name], [grade]. [Child] has a documented diagnosis of [PANS / PANDAS / autoimmune encephalitis], a chronic health condition that substantially limits one or more major life activities, including [learning, concentration, social interaction]. Specific accommodations I would like to discuss include: extended time on tests, reduced homework load during flares, scheduled sensory breaks, a quiet space for de-escalation, flexible attendance during severe flares, and a designated point of contact for flare communication. Please let me know what documentation you need and when we can schedule. Thank you.
To: classroom teacher
Template 4: Homework flexibility during a flare
Hi [Teacher Name], [child] is having a tough stretch. The homework load is currently overwhelming them in a way that is making things worse at home. Could we agree on the following for the next [two weeks / until I let you know]: [specific reductions, e.g. essential work only, no penalty for late submissions, oral instead of written when possible]. I want to keep them connected to school without it being a flashpoint. Thank you for your flexibility.
To: substitute teacher (via classroom teacher or office)
Template 5: Briefing a substitute
Brief context on one student: [Child]'s name is [name]. They have a chronic health condition that can cause sudden behavioral changes including anxiety, withdrawal, refusal, or tics. If something looks off, please do not respond with discipline. Allow them to step out for a quiet break, and contact the main office. Thank you.
If you are starting from scratch with a 504
Not medical advice. This content is for orientation only. Diagnosis requires a trained clinician. If your child is in acute distress, contact your provider or go to the nearest emergency room.