You are not alone
Most of the families we have talked to describe the same arc: a child who changed almost overnight, doctors who did not recognize what they were seeing, and the long, lonely work of figuring it out themselves. You are part of a much larger community than you have been told.
From parents
"[Real parent quote here, including the moment they realized something was wrong.]"
[First name or initial], parent to a [PANS / PANDAS] kid
"[Real parent quote here, focused on dismissal by doctors or the diagnostic journey.]"
[First name or initial], parent to a [PANS / PANDAS] kid
"[Real parent quote here, focused on recovery, hope, or what helped.]"
[First name or initial], parent to a [PANS / PANDAS] kid
Community spaces
These are places parents have found community. We do not run them, and we cannot vouch for every interaction in them, but they have helped many families feel less alone.
ASPIRE community resources
→Family support groups, regional meetups, and online community spaces hosted by ASPIRE.
PANDAS Network family resources
→Parent groups, family stories, and support resources organized by PANDAS Network.
If you want to share your own story
Not medical advice. This content is for orientation only. Diagnosis requires a trained clinician. If your child is in acute distress, contact your provider or go to the nearest emergency room.